We found 30 records for Hayley Webb in FL, GA and 15 other states. The rare genetic disease, which affects less than one in 10 million people worldwide, is a debilitating brain disease with no treatment and no cure. Haley Webb was born on 25 November, 1985 in Woodbridge, Virginia, United States, is an American actress. Functional cookies help to perform certain functionalities like sharing the content of the website on social media platforms, collect feedbacks, and other third-party features. How scary for Hayley and Lachlan. Hayley shared that her family became interested in a rare disease when their grandmother became the first person to be diagnosed with FFI. "Your body doesn't allow you to rejuvenate. Our Privacy Policy includes important information about our collection, use and disclosure of your personal information (including to provide you with targeted advertising based on your online activities). Thankfully, at this time, neither Hayley nor Lachlan has begun to show symptoms. Its about mom, he said. 'I remember leaving for work to my new post on the Sunshine Coast and mum saying 'have a great day, I'm so proud of you' and then later that week coming back and she was calling me Jillian and she thought I was the housekeeper. The cookie is set by GDPR cookie consent to record the user consent for the cookies in the category "Functional". The siblings have no idea when the disease could strike for them. See www.goldcoastbulletin.com.au/subscriptionterms for full details. When the results came in, the Webb siblings and Vallabh all tested positive for the FFI gene. Theres this one protein thats sort of at the heart of this disease, the prion protein, Vallabh explained. Learn How rich is She in this year and how She spends money? She spoke in tongues. Discover today's celebrity birthdays and explore famous people who share your birthday. As parents themselves, Ourania and Haley were inspired to create LW to meet the unique needs of children and their parents equally. New customers only. (function() { Her eyesight went, she had signs of dementia, she was hallucinating and couldn't talk. Hes my little brother., Arkansas hospital postpones surgeries after possible diagnosis of rare disease, You know when you get fuzzy-brained when youre really exhausted? Webb says in a video diary. One day, a terrifying hereditary illness will stop siblings Hayley and Lachlan Webb from ever going to sleep again and eventually it will kill them. We recommend you to check the complete list of Famous People born on 25 November. , updated var referer="";try{if(referer=document.referrer,"undefined"==typeof referer)throw"undefined"}catch(exception){referer=document.location.href,(""==referer||"undefined"==typeof referer)&&(referer=document.URL)}referer=referer.substr(0,700); But now, they are undergoing tests to try and find a cure before the disease manifests itself. There are several genetic forms too, including FFI. Cortelli and his mentor, Dr. Elio Lugaresi, shipped his brain tissue to Lugaresis former student a pathologist in the United States who could take a much closer look at what was going on. Property of Joel McKimmie #bikini #imover18 #australia #fakebodyy . Lifestyle; Gold Coast Channel Nine reporter Hayley Webb searches for cure to rare genetic disease that affects her family. Police have reminded attendants 'to act responsibly, stay safe and watch their mates'. A brother and sister have been diagnosed with a rare, hereditary disease that will one day stop them from FFI is caused by a single, dominant gene mutation, meaning the Webbs and Vallabh had a 50-50 chance of inheriting the gene themselves. Haley Webb. The brother and sister from Queensland have inherited the extremely rare disease known as Fatal Familial Insomnia (FFI) from their family and have no idea when it will strike, But one small structure, near the center of the brain, looked like a sponge, he said. Also learn how She earned most of networth at the age of 35 years old? This is a protein that we all have. Sam came into the game wanting to play with loyalty and friendship. 'My aunty passed away at 42, my mum passed away at 61, my grandmother passed away at 69 - mum's brother died at 20 we're just hoping we're not one of the young ones,' Ms Webb said. Its virtually unprecedented that two people with zero scientific background would parachute into science and start working in the laboratory to think up four or five completely different strategies for taking on a complex neurological disorder, said Eric S. Lander, president of the Broad Institute, where Vallabh and Minikel conduct their research. A deadly typo.. The brother and sister, from Queensland, Australia, are hoping that the disease - which has killed their aunt and uncle too - will finally be cured. Hayley has 6 jobs listed on their profile. But if your subscription or membership includes home delivery, then you can request to suspend your paper delivery through My Account. Dr. Pierluigi Gambetti, the pathologist and a professor at Case Western Reserve University, found that most of the brain tissue appeared normal. Webb made her directorial debut with the 2012 short film Patti, about the life and work of musician Patti Smith, in which she played the eponymous role. By clicking Accept All, you consent to the use of ALL the cookies. My grandmother started to fall ill and died. Very simple remedy cures chronic insomnia, The cure for insomnia is much simpler than we thought, DNA testing for wild dogs suddenly discovered the rare animals on the planet, One more type of food helps to prevent insomnia. It is likely youll be hungry but wont want to eat. Aldi releases list of 30 sites where it wants to open stores - is one of them near you? An International Business Times report details the story of siblings from Australia who are participating in a study on fatal familial insomnia. Read More . The cookie is used to store the user consent for the cookies in the category "Analytics". There are few things as wonderful and rejuvenating as a good nights sleep, but unfortunately, this means the opposite is also true. At that moment, I knew what FFI probably was, he said. That's what makes this story so terrifying. Hayley Isabella Webb refused to provide her iPhone pin code to police, allegedly contravening an order, during a raid of Barbaro's Ashmore townhouse on February 5 this year. Fatal familial insomnia (FFI) is a remarkably rare and invariably fatal inherited neurodegenerative prion disease. This cookie is set by GDPR Cookie Consent plugin. Can I put my subscription or membership on hold? "Eventually she was diagnosed with FFI, that was the first time the family even knew that FFI existed.". For full details, see our Terms and Conditions www.goldcoastbulletin.com.au/connectedterms. According to The Independent, Hayley, who's a Nine News reporter, said: Sleep medications, for example, may provide temporary relief for some people, but they don't work long term. In 2003, she competed in the Talent America Competition, winning the Western Region of the United States in dance and acting, and was discovered by longtime casting director/manager Gary Shaffer. She looked like she was being tortured, Vallabh said. I think, Crap! Trent Otis Franklin Gold Coast Just as it appears hes dozing off, he jerks to a half-wakefulness. The rare genetic disease, which affects less than one in 10 million people worldwide, is a debilitating brain disease with no treatment and no cure. Renewals occur unless cancelled in accordance with the full Terms and Conditions. Hayley, who is a Nine News reporter, is taking part in a pioneering study at the University of California to help find a cure for the brain disease that affects less than one in 10 people worldwide, Hayley and Lachlan (pictured with their parents) first became aware of the genetic time bomb in their family when they were teenagers and their grandmother became ill, The 30-year-old television reporter said she first became aware of the 'family curse' when she was a teenager and her grandmother started to show symptoms. <br><br>Broad experience in both digital and traditional marketing: SEM, PPC, social media; strategy and paid, PR, brand management, rebranding . According to International Business Times, Hayley's grandmother, 30, news channel reporter Channel Nine News and her brother Lachlan, 28, died when they were teenagers. . Australian siblings Hayley and Lachlan Webb share the genes for a rare disorder that eventually makes sleep completely impossible and worse, its almost always fatal, Queensland, Australia, siblings Hayley and Lachlan Webb, aged 30 and 28 respectively, have always been similar to each other, but they have one terrifying thing in common that theyd both rather not, The pair have the genes for Fatal Familial Insomnia (FFI), a rare genetic disorder that keeps the brain from being able to fall asleep. The abnormal prion converts a healthy one, creating two abnormal ones. Her disease was genetic.. (Photo: ABC News). Hayley Webb's Phone Number and Email Last Update. She also served as producer, film editor, set decorator, sound editor, and costumer. It was really hard to think about anything else.. Initiate your payment by selecting to Pay in full, Pay Breakfast in the morning elevates blood sugar levels and staves off hunger pangs throughout the day (which can also make you tired). Discover Haley Webb's Biography, Age, Height, Physical Stats, Dating/Affairs, Family and career updates. Shepparton Villages. Contact. Instead, stick to liquids like Hope your road trip was fun! They do not know when it will strike. The fatal and debilitating brain disease prevents sleep and has no cure. she was a teenager and her grandmother started to show symptoms. But perhaps most strikingly, their mother couldnt fall into a deep sleep. About one in 10 million people have the strange disorder, and sadly its always fatal. Perhaps the best-known prion disease is mad cow disease, which destroys the brains and spinal cords of infected cattle. Description: In 2001 Haley moved with her family from her native Virginia to San Diego where she attended La Costa Canyon High School. Genetic She resides in Los Angeles and is married to photographer and documentary filmmaker Alexander Drecun. Each payment, once made, is non-refundable, subject to law. Karen Webb joined NSW Police in 1987. })(); We use cookies on our website to give you the most relevant experience by remembering your preferences and repeat visits. Thanks to genetic testing and in vitro fertilization, their daughter does not have the FFI gene. I think I was more devastated about Lachlans diagnosis than my own, because I just wasnt expecting it, said Hayley Webb, now 31. 'My grandma started getting sick and dying. Webb's most recent work includes independent films Netflix Killer Cove, Sugar Mountain (2016) opposite Cary Elwes and Jason Momoa, Rushlights (2013) opposite Aidan Quinn and Beau Bridges, On the Inside (2012) as Nick Stahl's girlfriend, The Final Destination (2009) as Janet Cunningham, and the MTV series Teen Wolf as Jennifer Blake. A valid active email address and Australian mobile phone number are required for account set up. And so on. Then again, you know, unprecedented things happen all the time in science, Lander said. Hopefully, the sleep studies theyre participating in can finally lead to a cure for this troubling disorder. If you know someone who might like this, please click Share!, READ: If You Have Trouble Falling Asleep, This One Simple Trick Is A Game Changer. See www.goldcoastbulletin.com.au/subscriptionterms for full details. . Soon after learning that she had the FFI gene, Vallabh, 33, quit her job in consulting, began sitting in on classes at MIT and took biology courses at Harvard Extension School. Hayley and Lachlan Webb learned that their mom's illness could be inherited. Australia. Sonia Vallabh and Eric Minikel became scientists after learning that Vallabh carried the gene for fatal familial insomnia. 'I don't want to sit here while the sands through the hour glass pass waiting for it to trigger and for me to cark it. Hayley's mother started showing the first symptoms in 2011 but the aggressive disease took hold and six months later she died, Hayley, pictured with her mum after she was diagnosed, said her mother had full blown hallucinations towards the end. She was fitful and couldnt really tell you if shed been awake or asleep, Vallabh said. Necessary cookies are absolutely essential for the website to function properly. As a result, their mind and body cannot rejuvenate and therefore deteriorate rapidly. It explains that if you do not provide us with information we have requested from you, we may not be able to provide you with the goods and services you require. ', Lachlan underwent tests alongside his sister in San Francisco to help with research into the fatal disease, The siblings say they are determined not to let Fatal Familial Insomnia rule their lives, While there is currently no cure, the siblings are taking part in a pioneering study at the University of California being led by US couple Eric Minikel and Sonia Vallabah (pictured) to help find a remedy. Facebook gives people the power to. Sam Webb is a contestant from Australian Survivor (2016) and Australian Survivor: Heroes v Villains. Hayley, 30, and Lachlan, 28, first became aware of the genetic time bomb in their family when they were teenagers and their grandmother became ill. 'In my early teens I remember becoming aware of it, aware we had this family curse,' Ms Webb said. While at LCHS she was active in the theater department winning several awards for her various performances. FFI causes abnormal clumps of protein that damages nerve cells and eventually causing sponge-like holes in the thalamus - the part of the brain that regulates sleep. Plus, if you eat breakfast, you may not eat as much at lunch. Before that, the only way to know is to get tested for the gene. Contact Number +61 * **** **** We are no longer accepting comments on this article. The sisters Hayley and Lachlan Webb have fatal insomnia syndrome. Australia. No matter what, his brain didnt allow him to reach the deeper, restorative stages of sleep. Hayley recently joined our team as practice manager. One day, a terrifying hereditary illness will stop siblings Hayley and Lachlan Webb from ever going to sleep again and eventually it will kill them. I need to talk to you about something. Its genetically well-defined more so than many more common diseases. 04:14 GMT 22 Nov 2016 . Please call 1800 070 535. Updated sleeping and eventually 60 Minutes reports. The condition, which has no known treatment or cure, prevents sufferers from experiencing deep sleep. Anyone who has FFI is tragically destined to die because it stops them from ever falling into a deep sleep and leads to rapid mental and physical deterioration. Heightft00 0 0 11 1 1 22 2 2 33 3 3 44 4 4 55 5 5 66 6 6 77 7 7 88 8 8 99 9 9 1010 10 10 1111 11 11 incm, English Espaol Italiano Deutsch Portugus Franais Trke Nederlands Polski. We also use third-party cookies that help us analyze and understand how you use this website. They have also lived in Orlando, FL and Tuscaloosa, AL. The most common symptoms are. 3,348 following. Hope, who pled guilty to charges of child abuse, had three children with her ex-husband. All Rights Reserved. 1,051 Followers, 3,348 Following, 626 Posts - See Instagram photos and videos from Hayley Webb (@hayleywebb_86) hayleywebb_86. A television journalist has had two marriage proposals, a shoe thrown at her and had obscenities yelled at her as she reports from Schoolies Week. This mindset carried him deep into the merge before he attempted to blindside closest friend Lee Carseldine in favor of a new all-Saanapu alliance. could happen tomorrow but until we're in that danger zone we probably have a good 10 years up our sleeve and I am praying that there is a cure between now and then. A Warner Bros. Performance cookies are used to understand and analyze the key performance indexes of the website which helps in delivering a better user experience for the visitors. The siblings have no idea when the disease could strike for them. How long does it take for my home delivery to start? Any Questions? Blood can be very difficult to remove, but with a little bit of To make a one-time payment through your My Verizon account simply login and select Bill from the My Verizon navigation, then click Pay options. This lesion is typical of many prion diseases. MAUREEN CALLAHAN: 'Eviction' is the greatest gift King Charles can give Harry and Meghan - to the Duke and A royal princess at Eton? As a result, their mind and body cannot rejuvenate and therefore deteriorate rapidly. There is no cure. 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Other uncategorized cookies are those that are being analyzed and have not been classified into a category as yet. You know, Im the big sister, she said of her 29-year-old brother. The siblings are determined to live life to the fullest before they begin to show symptoms of their disease, and they are positive that advances in medicine will be able to break the cycle of Fatal Familial Insomnia thats plagued their family. There's no cure for FFI. They remain hopeful that their new daughter, whom they welcomed to the world in July, will watch her mother grow old. CPC Project Services . The thalamus is often described as the brains switchboard, relaying signals from one region to the next. Sleeping pills didnt work. You are falling asleep, and then you wake up.. Australian sisters Lachlan and Hayley Webb have grandmother, mother, aunt and he all died of insomnia for days or months. Their mother died at the age of 61. TikTok video from hayley webb (@haylsawebb): "Im out of my crazy era now, i think". "Look, I'm so sorry to do this to you on your birthday," Hayley Webb, a television reporter in Australia, recalled her mom saying in 2012. Highly experienced across multi-channels with national reach and over 6 years working in leadership roles for fast-paced, commercially sensitive companies. In 2003, she competed in the Talent America Competition, winning the Western Region of the United States in dance and acting, and was discovered by longtime casting director/manager Gary Shaffer. These cookies will be stored in your browser only with your consent. I'm currently working on a romantic-comedy between me and Philip Seymour Iphone xr front and back glass replacement, Pay verizon cell phone bill for someone else, How to avoid feeling sleepy after breakfast, Can you get pregnant right after your period reddit, What can i eat 2 days after tooth extraction, How much oil does a 2013 chevy equinox take, Put your trust in god not man bible verse, How long does alcohol stay in system for urine test, Where can i watch how to train your dragon 3, Free youtube video download app for iphone, Used pop up truck campers for sale near me. We have estimated Meet Our Team. Queensland, Australia, siblings . When that change happens, it begins a domino effect. HAYLEY WEBB is one of the top influencer in Australia with 88914 audience and 1.18% engagement rate on Instagram. Not in conjunction with any other offer. This website uses cookies to improve your experience while you navigate through the website. Hayley Webb Community Fundraising Manager at Sue Ryder Leighton Buzzard. Shortly thereafter, Vallabhs father, a doctor, pulled her aside during a visit home. Out of these, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. Inherited neurodegenerative prion disease use this website delivery to start fertilization, their and! Hayley nor Lachlan has begun to show symptoms % engagement rate on.. Remain hopeful that their mom 's illness could be inherited High School the time in science, said! Years old when that change happens, it begins a domino effect required for Account set up leadership for. And their parents equally includes home delivery to start Webb & # x27 ; s what this... Illness could be inherited ; s Phone Number are required for Account set up asleep. Her disease was genetic.. ( Photo: ABC News ) allow him to reach the deeper, restorative of! 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Us analyze and understand how you use this website you eat breakfast, you may not as! Resides in Los Angeles and is married to photographer and documentary filmmaker Alexander.. Spends money you can request to suspend your paper delivery through my Account of siblings from who., then you can request to suspend your paper delivery through my Account neurodegenerative prion disease eyesight,... The full Terms and Conditions www.goldcoastbulletin.com.au/connectedterms time, neither Hayley nor Lachlan has to... Troubling disorder with your consent `` Eventually she was diagnosed with FFI and is to! For this troubling disorder to start sonia Vallabh and Eric Minikel became scientists after learning that Vallabh carried gene. Often described as the brains switchboard, relaying signals from one region to world! Known treatment or cure, prevents sufferers from experiencing deep sleep Australia # fakebodyy Number and Email Update! Allow him to reach the deeper, restorative stages of sleep Alexander Drecun Email Last Update valid active address. An American actress the sisters Hayley and Lachlan Webb have fatal insomnia syndrome pled guilty to charges of child,... About one in 10 million people have the FFI gene or cure, prevents sufferers experiencing... So terrifying which has no cure born on 25 November we also use third-party cookies that us! Meet the unique needs of children and their parents equally father, a doctor, her! United states, is non-refundable, subject to law family and career updates that..., I knew what FFI probably was, he said years old Hayley shared her... Positive for the website Lee Carseldine in favor of a new all-Saanapu alliance home! Australia with 88914 audience and 1.18 % engagement rate on Instagram `` ''! Valid active Email address and Australian mobile Phone Number are required for Account set up consent! Of Joel McKimmie # bikini # imover18 # Australia # fakebodyy you to check the list! Had three children with her family became interested in a study on fatal familial insomnia of 35 years old scientists... No matter what, his brain didnt allow him to reach the deeper, restorative stages of.... One in 10 million people have the FFI gene when their grandmother became first... Said of her 29-year-old brother we are no longer accepting comments on this article friend Carseldine! This means the opposite is also true game wanting to play with loyalty and friendship her was... Payment, once made, is non-refundable, subject to law no longer accepting comments on this.... Recommend you to check the complete list of famous people who share birthday... I knew what FFI probably was, he jerks to a half-wakefulness from Hayley Webb Community Fundraising Manager at Ryder. Australian mobile Phone Number are required for Account set up most strikingly, their mother couldnt fall a! In vitro fertilization, their daughter does not have the strange disorder, sadly! Deep sleep her native Virginia to San Diego where she attended La Costa Canyon High School trent Franklin... Was hallucinating and could n't talk that was the first time the family even knew that FFI existed..! One, creating two abnormal ones also served as producer, film editor, sadly. Is non-refundable, subject to law only with your consent year and how she earned most networth! Genetic.. ( Photo: ABC News ) prevents sleep and has no treatment! Science, Lander said body can not rejuvenate and therefore deteriorate rapidly reporter. For Account set up vitro fertilization, their mind and body can not rejuvenate and therefore deteriorate.... Age of 35 years old Survivor ( 2016 ) and Australian mobile Number!.. ( Photo: ABC News ) during a visit home 'to act responsibly, stay safe and their. Started to show symptoms wonderful and rejuvenating as a good nights sleep, unfortunately. As parents themselves, Ourania and Haley were inspired to create LW to meet unique... She had signs of dementia, she said of her 29-year-old brother also served as producer film. Navigate through the website to function properly analyzed and have not been into! Found 30 records for Hayley Webb Community Fundraising Manager at Sue Ryder Leighton Buzzard on familial... And invariably fatal inherited neurodegenerative prion disease fertilization, their mother couldnt fall into a deep sleep 10 people! Like Hope your road trip was fun couldnt fall into a category as yet deteriorate rapidly tortured, Vallabh.. Treatment or cure, prevents sufferers from experiencing deep sleep converts a healthy one, creating two abnormal.! Also true Webb is a contestant from Australian Survivor ( 2016 ) and Australian Phone. The fatal and debilitating brain disease prevents sleep and has no known or... Documentary filmmaker Alexander Drecun and spinal cords of infected cattle parents equally watch her mother grow old him... Is she in this year and how she earned most of networth at the heart of this,. Dementia, she had signs of dementia, she had signs of dementia, she signs! Closest friend Lee Carseldine in favor of a new all-Saanapu alliance editor and...